The Island Gallery, Bridewell Street, Bristol BS1 2LE
A ground-breaking end of life guide
Motor neurone disease (MND) is a terminal illness that crystallises many of the issues about how we best care for people at the end of their lives. A new resource about end of life has helped build a bridge between families and professionals and to transform their conversations. The ‘End of life guide’ from the MND Association has won the BMA’s Patient Information of the Year award , and is being used widely by palliative care teams. Kaye Stevens, Care Information Manager will reveal how the guide was developed, using feedback from people with or affected by MND, and how it can help to open difficult but rich conversations about coming to the end of life.
All are welcome at this event; there will be time for discussion with the audience at the end of the talk.
As Care Information Manager for the Motor Neurone Disease (MND) Association, Kaye manages over 50 publications about MND for the lay reader in England, Wales and Northern Ireland, including core guides and a range of information sheets. Her mission is to help people with or affected by MND achieve the best possible quality of life, when faced by the challenges of this complex, life-shortening disease. In addition to the development and revision of content, Kaye achieved accreditation with The Information Standard (as governed by NHS England) in 2011. This requires a rigorous process when producing public health and social care information, to ensure content is trustworthy. Kaye’s early career involved systems analysis, documentation and training in the corporate sector. Prior to joining the MND Association in 2010, she spent 10 years teaching in the UK prison system, with additional work for adult learning disabilities. Kaye is a professional author and playwright in her spare time.